Happy Tired Mummy: Victoria Wilson on Living with Charcot Marie Tooth Disease | The Health Sessions

Happy Tired Mummy: Victoria Wilson on Living with Charcot Marie Tooth Disease

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips. Victoria Wilson is a thirty-something mum and wife who suffers from a neurological condition called Charcot Marie Tooth Disease. Through … Read more >



Life After Diagnosis: Jessica Kendall James on Redefining A New Healthy

Jessica Kendall James is the chronic illness lifestyle blogger and creator behind OurNewHealthy.com and The Spoonie Planner, living her life to the fullest and seeking to redefine “healthy” with multiple chronic illnesses. After spending many years in isolation while struggling to find a proper diagnosis, Jessica created The Spoonie Planner to lift herself back up and find diagnoses, treatment, and a life beyond just survival. It was in seeing how it empowered her that Jessica realized The Spoonie Planner might be able to help others too, and so she created Our New Healthy, a lifestyle brand and blog for the chronically ill. And this December, with the help of her Spoonie Community, she was able to launch the brand’s first tool, The Spoonie Planner.

Tell us a little about yourself.

Hi, I’m Jessica! I am 25 years old and I love all things ocean, nature, and adventure-related! My greatest gift in life is my friendships, and my deepest passion lies in a few different arenas including organic beauty and lifestyle, patient empowerment, and the organization aisle at Target.

I also happen to live with 8 main chronic illnesses, including EDS Type 3, POTS, Gastroparesis, MCAD, Ankylosing Spondylitis, Celiac Disease, Hypothyroid, and TMD, among other underlying diseases and disorders. I was born with EDS Type 3, that is for certain, but many of my other illnesses could have been avoided with proper early diagnoses of my EDS. You can learn more about me and my journey at OurNewHealthy.com !

Read more >



Pain, Periods & Peaks: Sophie McDonald On Living with Endometriosis

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips.

Sophie McDonald on Living with Endometriosis | The Health Sessions

Sophie McDonald is a student mental health nurse from York who suffers from endometriosis. She is currently training to hike the Yorkshire Three Peak with her husband Tom, to fundraise for Endometriosis UK. 

 

Tell us a little about yourself.

 I’m Sophie, just a few weeks away from turning 30 and I’m a student mental health nurse. I’m from Yorkshire, where I live with my husband. I have endometriosis and recently started running the Endometriosis UK support group in York.

 

When did you first get sick?

For anyone who is unfamiliar with endometriosis, it is a condition affecting 1 in 10 women where cells similar to those lining the uterus grow outside of that area, often in other parts of the pelvis such as the ovaries, fallopian tubes, bladder and bowel. These cells react in a similar way to those lining the uterus, responding to hormonal changes in the body and bleeding when a women is on her period, causing chronic inflammation.

Endometriosis can cause chronic pain, heavy and prolonged periods, bladder and bowel problems, fatigue and infertility. There are treatments available to manage the symptoms, but there is no cure. It’s important to note that symptoms vary considerably and no two women will have the same experience or response to treatment.

Read more >



Rolling with the Punches: PJ from Pajama Daze on Living with Multiple Chronic Conditions

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips.

Rolling with the Punches: PJ from PajamaDaze on Living with Multiple Chronic Conditions | The Health Sessions

PJ runs the motivational and inspirational website Pajama Daze for people with chronic illness, pain and fatigue. She’s currently writing her first book. 

 

Tell us a little about yourself.

I’m 61 years old, retired on disability. I earned a BS Ed and an MA in Communication, am a Certified (PA) Holistic Health Educator, and was a Fellow of the PA Rural Leadership Program. In my previous life I worked in radio and television in both advertising and documentary production. I’ve worked in a couple of independent films, as well having published various pieces of freelance writing and photography. I also worked in community health education for several years.

I am currently writing my first book based on my website Pajama Daze for people with chronic illness. I’m also doing what I can to save pollinators through local projects and my website Posies for Pollinators.

I’ve had asthma all my life, arthritis and minor subluxations at various sites for much of my life, uterine cancer in 2002, three mild heart attacks in 2005, and another in 2008, caused by vascular spasms. It was discovered in 2010 that I have an uncommon disease called Fibromuscular Dysplasia (FMD), which causes abnormal cell growth in my carotid, vertebral and renal arteries, as well as other problems with connective tissue. I suffered with Chronic Fatigue Syndrome for 10 years after my heart attacks, but went into remission last summer, thankfully.

 

When did you first get sick?

I first became noticeably symptomatic with FMD in my mid-30’s, though it would be more than 20 years before I was diagnosed. I suffered from severe, debilitating migraines and dizzy spells which, thankfully, have become less prolonged and severe, but still crop up from time to time.

Read more >