Tried & Tested: How Aniko Jori-Molnar Created Her Own Action Plan for Recovery | The Health Sessions

Tried & Tested: How Aniko Created Her Own Action Plan for Recovery

This guest post is written by The Health Sessions reader Aniko Jori-Molnar, who shares her experiences with testing the strategies from ‘How to Create Your Own Action Plan for Recovery‘.

 

Why do I need to recover?

An important part of my identity is a fearless warrior that can handle (or can look like one who handles) everything in life. Good and bad. So I’m letting you in on a huge secret right now: I’ve been struggling with a chronic illness for nine years, and I’ve been struggling to accept this struggle.

I have EGPA (Churg-Strauss Syndrome), a rare auto-immune disease that attacks first and foremost the lungs, causing intense asthma symptoms, but then gradually causes all kinds of other problems in the body.

Of the many medication options, I’ve tried a few, and they’ve worked just fine, until now. With a recent heart involvement, the medical team decided to proceed to a chemo kind of drug for a more effective treatment. I feared the treatment as well as the signs of degrading health state I am in.

 

Why I choose to read a book about recovery

I could only think it is another milestone down the unlucky road. I was back to the old, pessimistic mental state. I was still not over the fact I’m sick forever. And I still wanted my old life back, and I would go as far as to throw a tantrum over it like a child.

I also knew this was not OK and I needed somebody (or something) to have my back when reality strikes. I needed to change the perspective.

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Happy Tired Mummy: Victoria Wilson on Living with Charcot Marie Tooth Disease | The Health Sessions

Happy Tired Mummy: Victoria Wilson on Living with Charcot Marie Tooth Disease

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips. Victoria Wilson is a thirty-something mum and wife who suffers from a neurological condition called Charcot Marie Tooth Disease. Through … Read more >



Life After Diagnosis: Jessica Kendall James on Redefining A New Healthy

Jessica Kendall James is the chronic illness lifestyle blogger and creator behind OurNewHealthy.com and The Spoonie Planner, living her life to the fullest and seeking to redefine “healthy” with multiple chronic illnesses. After spending many years in isolation while struggling to find a proper diagnosis, Jessica created The Spoonie Planner to lift herself back up and find diagnoses, treatment, and a life beyond just survival. It was in seeing how it empowered her that Jessica realized The Spoonie Planner might be able to help others too, and so she created Our New Healthy, a lifestyle brand and blog for the chronically ill. And this December, with the help of her Spoonie Community, she was able to launch the brand’s first tool, The Spoonie Planner.

Tell us a little about yourself.

Hi, I’m Jessica! I am 25 years old and I love all things ocean, nature, and adventure-related! My greatest gift in life is my friendships, and my deepest passion lies in a few different arenas including organic beauty and lifestyle, patient empowerment, and the organization aisle at Target.

I also happen to live with 8 main chronic illnesses, including EDS Type 3, POTS, Gastroparesis, MCAD, Ankylosing Spondylitis, Celiac Disease, Hypothyroid, and TMD, among other underlying diseases and disorders. I was born with EDS Type 3, that is for certain, but many of my other illnesses could have been avoided with proper early diagnoses of my EDS. You can learn more about me and my journey at OurNewHealthy.com !

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Pain, Periods & Peaks: Sophie McDonald On Living with Endometriosis

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips.

Sophie McDonald on Living with Endometriosis | The Health Sessions

Sophie McDonald is a student mental health nurse from York who suffers from endometriosis. She is currently training to hike the Yorkshire Three Peak with her husband Tom, to fundraise for Endometriosis UK. 

 

Tell us a little about yourself.

 I’m Sophie, just a few weeks away from turning 30 and I’m a student mental health nurse. I’m from Yorkshire, where I live with my husband. I have endometriosis and recently started running the Endometriosis UK support group in York.

 

When did you first get sick?

For anyone who is unfamiliar with endometriosis, it is a condition affecting 1 in 10 women where cells similar to those lining the uterus grow outside of that area, often in other parts of the pelvis such as the ovaries, fallopian tubes, bladder and bowel. These cells react in a similar way to those lining the uterus, responding to hormonal changes in the body and bleeding when a women is on her period, causing chronic inflammation.

Endometriosis can cause chronic pain, heavy and prolonged periods, bladder and bowel problems, fatigue and infertility. There are treatments available to manage the symptoms, but there is no cure. It’s important to note that symptoms vary considerably and no two women will have the same experience or response to treatment.

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