Happy Tired Mummy: Victoria Wilson on Living with Charcot Marie Tooth Disease | The Health Sessions

Happy Tired Mummy: Victoria Wilson on Living with Charcot Marie Tooth Disease

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips. Victoria Wilson is a thirty-something mum and wife who suffers from a neurological condition called Charcot Marie Tooth Disease. Through … Read more >



Life After Diagnosis: Jessica Kendall James on Redefining A New Healthy

Jessica Kendall James is the chronic illness lifestyle blogger and creator behind OurNewHealthy.com and The Spoonie Planner, living her life to the fullest and seeking to redefine “healthy” with multiple chronic illnesses. After spending many years in isolation while struggling to find a proper diagnosis, Jessica created The Spoonie Planner to lift herself back up and find diagnoses, treatment, and a life beyond just survival. It was in seeing how it empowered her that Jessica realized The Spoonie Planner might be able to help others too, and so she created Our New Healthy, a lifestyle brand and blog for the chronically ill. And this December, with the help of her Spoonie Community, she was able to launch the brand’s first tool, The Spoonie Planner.

Tell us a little about yourself.

Hi, I’m Jessica! I am 25 years old and I love all things ocean, nature, and adventure-related! My greatest gift in life is my friendships, and my deepest passion lies in a few different arenas including organic beauty and lifestyle, patient empowerment, and the organization aisle at Target.

I also happen to live with 8 main chronic illnesses, including EDS Type 3, POTS, Gastroparesis, MCAD, Ankylosing Spondylitis, Celiac Disease, Hypothyroid, and TMD, among other underlying diseases and disorders. I was born with EDS Type 3, that is for certain, but many of my other illnesses could have been avoided with proper early diagnoses of my EDS. You can learn more about me and my journey at OurNewHealthy.com !

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Pain, Periods & Peaks: Sophie McDonald On Living with Endometriosis

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips.

Sophie McDonald on Living with Endometriosis | The Health Sessions

Sophie McDonald is a student mental health nurse from York who suffers from endometriosis. She is currently training to hike the Yorkshire Three Peak with her husband Tom, to fundraise for Endometriosis UK. 

 

Tell us a little about yourself.

 I’m Sophie, just a few weeks away from turning 30 and I’m a student mental health nurse. I’m from Yorkshire, where I live with my husband. I have endometriosis and recently started running the Endometriosis UK support group in York.

 

When did you first get sick?

For anyone who is unfamiliar with endometriosis, it is a condition affecting 1 in 10 women where cells similar to those lining the uterus grow outside of that area, often in other parts of the pelvis such as the ovaries, fallopian tubes, bladder and bowel. These cells react in a similar way to those lining the uterus, responding to hormonal changes in the body and bleeding when a women is on her period, causing chronic inflammation.

Endometriosis can cause chronic pain, heavy and prolonged periods, bladder and bowel problems, fatigue and infertility. There are treatments available to manage the symptoms, but there is no cure. It’s important to note that symptoms vary considerably and no two women will have the same experience or response to treatment.

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How to Cope with a Neurological Condition: Rhiann Johns on Pain, Pacing and Positivity

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips.

 

Coping with a Neurological Condition: Rhiann Johns on Pain, Pacing and Positivity | The Health Sessions

 

Tell us a little about yourself.

My name is Rhiann and I am nearly 30 from a small town called Pontypridd in South Wales. I was diagnosed with a neurological condition, known as a long-standing brain stem lesion which causes dizziness, vertigo and a symptom known as spastic paraparesis which causes severe stiffness and weakness in the legs. I have a 2:1 degree in Psychology and currently live with my parents and dog called Honey. I write on my personal blog called ‘My Brain Lesion and Me’.

 

When did you first get sick?

This is a really interesting question and one which we cannot answer! Funnily enough, when I was first born the doctors thought that there was something wrong with me, and I had a brain scan at 2 days old. Looking back there were little signs throughout my childhood that there wasn’t something quite right, but they were easy to brush off as part of growing up. Throughout my late childhood and teenage years, the dizziness was a big part of my life, which only deteriorated as I became older, along with all my other symptoms and especially the problems with my mobility.

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Living with Lyme and POTS: Sophia Galpin on Limitations and Listening to Your Body

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems?  In this interview series, real life ‘spoonies’ share their stories and tips. 

 

Interview with Sophia Galpin: How to Cope with Chronic Lyme Disease and POTS | The Health Sessions

 

Sophia Galpin is a food, health and lifestyle blogger battling with chronic Lyme disease and Postural Orthostatic Tachycardia Syndrome (POTS). On her blog Spoonie Sophia, she shares her thoughts on coping with chronic illness as well as her passion for creating delicious healthy recipes.

 

Tell us a little about yourself. 

I’m Sophia, I am 26 and suffer from chronic Lyme disease and Postural Orthostatic Tachycardia Syndrome (POTS). Despite my illness I am a keen baker and a health/food blogger. I live in beautiful Cornwall with my boyfriend and little dachshund pup, Copper. I enjoy nothing more than little trips to the beach; feeling the sea air on my face whilst sipping a hot chocolate!

 

When did you first get sick?

I have suffered from chronic neuropathic pain from the waist down since 2008 (when I was 18). I January 2013 I started getting new symptoms including migraines, muscle pain, weakness, crippling fatigue, joint pain, insomnia, heart problems (tachycardia), and became very sick.

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