Fragile Fighter: Lara Bloom on Living with Ehlers-Danlos Syndrome | The Health Sessions

Fragile Fighter: Lara Bloom on Living with Ehlers-Danlos Syndrome

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems?  In this interview series, real life ‘spoonies’ share their stories and tips. Lara Bloom is the President and CEO of The Ehlers-Danlos Society and responsible for globally raising awareness of rare, … Read more >



How Yoga Helps Rachel Marie White Heal | The Health Sessions

Teaming Up with Your Body: How Yoga Helps Rachel Marie White Heal

When you’re diagnosed with chronic illness, is there anything you can do to improve your health and happiness? Can you (fully) recover from persisting health problems, and if so, how? In this interview, Rachel Marie White from Sleepy Santosha shares her story.  Tell us a little about yourself. Hi, my name is Rachel. I’m a certified yoga … Read more >



Finding Beauty in the Midst of Fibromyalgia: Charis on Living Intentionally with Chronic Illness | The Health Sessions

Finding Beauty in the Midst of Fibromyalgia: An Interview with ‘Chronically’ Charis

What’s it really like to live with chronic health problems every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their experiences and tips.

Charis is a twenty-something business management student from Singapore. On Chronically Charis, she chronicles her journey with Fibromyalgia and shares how to live intentionally with chronic illness. 

Tell us a little about yourself.

Hi my name is Charis! I’m from sunny Singapore and I run the blog www.chronicallycharis.com where I write about my journey with Fibromyalgia. I’m in my early twenties and I’m currently a full-time student in business management. I love food, makeup, yoga, and travel and when I’m not resting in bed you’ll find me discovering delicious(and gluten-free) food about town 🙂 If you want to follow my misadventures with chronic illness, do check out my blog and follow me on Instagram at @chronicallycharis.

When did you first get sick?

I’ve been sick pretty much half my life now! It’s scary to say it out loud but honestly, it hasn’t been that bad. I first started feeling really tired and getting fevers and aches all the time when I was about 14/15 but my doctors just thought it was “stress” or “growing pains”. As I grew older, the symptoms started to get worse and I developed a lot of stomach problems, even necessitating a hospitalization. Much later, I discovered that my stomach problems were actually gluten and lactose intolerances, which many people with fibromyalgia have. After many trips to see specialists, a rheumatologist finally diagnosed me with fibromyalgia. It’s a diagnosis of omission (I tested negative of Rheumatoid Arthritis and Lupus which quite a few doctors suspected my disease to be at first) but to be perfectly frank, it was a huge relief to know that my disease had a name instead of thinking it was all inside my head!

Read more >Finding Beauty in the Midst of Fibromyalgia: An Interview with ‘Chronically’ Charis



More Than 'Just a Headache': What's It Like to Live with Migraine? | The Health Sessions

More Than ‘Just a Headache’: What It’s Really Like to Live with Chronic Migraine

What’s it really like to live with chronic health problems every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their experiences and tips.

Danielle Newport Fancher is a writer, migraine advocate and author of 10: A Memoir of Migraine Survival. She build a network for migraine sufferers called Migraine Writer. 

 

  1. Tell us a little about yourself.

My name is Danielle Newport Fancher. I’m a writer and migraine advocate. I’m sick of the stigma that a migraine is seen as “just a headache.” And, I am on a mission to change that perception.

  1. When did you first get sick?

I’ve been suffering from migraine since the age of 16. I’ve experienced chronic migraine for the past ten years. And on 10/2/2013, a migraine started that never stopped. In result. I’ve been battling constant pain ever since. This means that I haven’t had break (not even for a minute) in over five years.

  1. In what ways does having migraine affect your daily life?

Given that I am in constant pain, I am always catering to my migraine in every decision that I make. I don’t want to make a poor decision (like not drinking enough water or accidentally skipping a meal) to put me over the edge and trigger a new migraine.

Read more >More Than ‘Just a Headache’: What It’s Really Like to Live with Chronic Migraine



You Look Okay to Me: Jameisha Prescod on What It's Really Like to Live with Lupus | The Health Sessions

You Look Okay to Me: Jameisha Prescod on What It’s Really Like to Live with Lupus

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their experiences and tips.

Jameisha Prescod is the founder of You Look Okay To Me, the online platform for pain and chronic illness. The platform explores the links between chronic illness and tech, art and culture through the creation of short documentaries, podcast episodes, animation and online articles.

 

Tell us a little about yourself.

My name is Jameisha Prescod. I’m 22 years old from London. I am a documentary filmmaker/editor and founder of an online platform for pain and chronic illness called You Look Okay To Me. I recently graduated university in Digital Film Production. I was diagnosed with Systemic Lupus Erythematosus and later with Femoroacetabular Impingement, Migraines and Arthritis.

Read more >You Look Okay to Me: Jameisha Prescod on What It’s Really Like to Live with Lupus