How to Cope with a Neurological Condition: Rhiann Johns on Pain, Pacing and Positivity

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips.

Coping with a Neurological Condition: Rhiann Johns on Pain, Pacing and Positivity | The Health Sessions

 

Rhiann Johns is a chronic illness blogger from South Wales. On My Brain Lesion and Me, she writes how she copes with her neurological condition.

 

Tell us a little about yourself.

My name is Rhiann and I am nearly 30 from a small town called Pontypridd in South Wales. I was diagnosed with a neurological condition, known as a long-standing brain stem lesion which causes dizziness, vertigo and a symptom known as spastic paraparesis which causes severe stiffness and weakness in the legs. I have a 2:1 degree in Psychology and currently live with my parents and dog called Honey. I write on my personal blog called ‘My Brain Lesion and Me’.

 

When did you first get sick?

This is a really interesting question and one which we cannot answer! Funnily enough, when I was first born the doctors thought that there was something wrong with me, and I had a brain scan at 2 days old. Looking back there were little signs throughout my childhood that there wasn’t something quite right, but they were easy to brush off as part of growing up. Throughout my late childhood and teenage years, the dizziness was a big part of my life, which only deteriorated as I became older, along with all my other symptoms and especially the problems with my mobility.

Read more >How to Cope with a Neurological Condition: Rhiann Johns on Pain, Pacing and Positivity



Hope in Times of Chronic Illness

Hope in Times of Chronic Illness

 

“There is no medicine like hope, no incentive so great, no tonic so powerful as the expectation of tomorrow.”

– Orison S. Marden

 

Someone once told me it’s better not to have hope, because it will only lead to disappointment.

I couldn’t disagree more. Hope has shaped my life time and time again.

Read more >Hope in Times of Chronic Illness