How to Cope with a Neurological Condition: Rhiann Johns on Pain, Pacing and Positivity

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems? In this interview series, real life ‘spoonies’ share their stories and tips.

Coping with a Neurological Condition: Rhiann Johns on Pain, Pacing and Positivity | The Health Sessions

 

Rhiann Johns is a chronic illness blogger from South Wales. On My Brain Lesion and Me, she writes how she copes with her neurological condition.

 

Tell us a little about yourself.

My name is Rhiann and I am nearly 30 from a small town called Pontypridd in South Wales. I was diagnosed with a neurological condition, known as a long-standing brain stem lesion which causes dizziness, vertigo and a symptom known as spastic paraparesis which causes severe stiffness and weakness in the legs. I have a 2:1 degree in Psychology and currently live with my parents and dog called Honey. I write on my personal blog called ‘My Brain Lesion and Me’.

 

When did you first get sick?

This is a really interesting question and one which we cannot answer! Funnily enough, when I was first born the doctors thought that there was something wrong with me, and I had a brain scan at 2 days old. Looking back there were little signs throughout my childhood that there wasn’t something quite right, but they were easy to brush off as part of growing up. Throughout my late childhood and teenage years, the dizziness was a big part of my life, which only deteriorated as I became older, along with all my other symptoms and especially the problems with my mobility.

Read more >How to Cope with a Neurological Condition: Rhiann Johns on Pain, Pacing and Positivity



Living with Lyme and POTS: Sophia Galpin on Limitations and Listening to Your Body

What’s it really like to live with chronic illness every day? How do you deal with the physical symptoms, emotional turmoil and practical problems?  In this interview series, real life ‘spoonies’ share their stories and tips. 

Interview with Sophia Galpin: How to Cope with Chronic Lyme Disease and POTS | The Health Sessions

 

Sophia Galpin is a food, health and lifestyle blogger battling with chronic Lyme disease and Postural Orthostatic Tachycardia Syndrome (POTS). On her blog Spoonie Sophia, she shares her thoughts on coping with chronic illness as well as her passion for creating delicious healthy recipes.

 

Tell us a little about yourself. 

I’m Sophia, I am 26 and suffer from chronic Lyme disease and Postural Orthostatic Tachycardia Syndrome (POTS). Despite my illness I am a keen baker and a health/food blogger. I live in beautiful Cornwall with my boyfriend and little dachshund pup, Copper. I enjoy nothing more than little trips to the beach; feeling the sea air on my face whilst sipping a hot chocolate!

 

When did you first get sick?

I have suffered from chronic neuropathic pain from the waist down since 2008 (when I was 18). I January 2013 I started getting new symptoms including migraines, muscle pain, weakness, crippling fatigue, joint pain, insomnia, heart problems (tachycardia), and became very sick.

Read more >Living with Lyme and POTS: Sophia Galpin on Limitations and Listening to Your Body



Kaila Prins about Coping with Eating Disorders: “I see it as a challenge that I want to overcome every single day”

This is the first interview in a series about what it’s really like to cope with chronic illness every day. How do you deal with the physical symptoms, emotional turmoil and practical problems? Today Kaila Prins of In My Skinny Genes shares her story about living with an eating disorder and how blogging about it helped her heal. 

 

Kaila Prins

Tell us a little about yourself.

I’m a 26 (soon be 27–where did the time go?) year old Marketing Copywriter living in San Jose, CA.  I’m also a certified personal trainer, an exercise addict, and a recovering anorectic. I currently blog about disordered eating and exercise at inmyskinnygenes.com and run the Finding Our Hunger podcast. On the podcast, we talk to everyday people as well as “personalities” about their journey instead of the end point, and we share stories of working through issues of disordered eating, body image, identity, career goals, perfectionism, and building community in this strange, wonderful constantly-changing world.

Read more >Kaila Prins about Coping with Eating Disorders: “I see it as a challenge that I want to overcome every single day”